Friday, January 31, 2020

When Grandma Has Cancer

As you can see from the date on the last entry in this blog, I have not been posting for the last few years. The reason for that is I was diagnosed with ovarian cancer in October 2018. I had seven rounds of aggressive chemotherapy with stays in the hospital in between. In May 2019, I had surgery and was in remission for the summer and early fall of 2019. Then the bad news, the cancer came back.
Along with the posts about grandparenting, I want to use this blog to help grandparents and others to help the children in their lives to understand, live and thrive when “Grandma has cancer.”
The first question most people have is should they tell their children about a cancer diagnosis in the family. The answer, of course, is always up to the parents. Some parents believe their children are not capable of understanding and telling them would just upset them.  It is always your choice as a parent to tell the child or not but remember that the child might find out anyway and feel very betrayed. I live on Long Island and have my home phone through Cablevision. When my phone rings, the number, and name come up on the television. When the hospital calls, the name “Cancer Center” comes up on the television. My granddaughter spends time at my house and could have seen that on the television screen. Fortunately, she had been told right away, so she wasn’t shocked.
Children are very perceptive and will sense there is something wrong. They often see the world through their own filter, seeing themselves at the center. They may sense you are keeping something from them and worry needlessly. Children need to be dealt with honestly.
If you choose to tell them, make sure to prepare yourself for it, even going so far as writing down what you want to say. Make sure to use words that are encouraging, not frightening, but the most important thing is, to be honest.
Try to keep your tone calm and reassuring. Let them cry but don’t be upset if they show no emotion at all. Just like adults, children need time to process information and might come back to you later for more information.
          It is important to understand that the first conversation is not the last. Children often have a lot of questions and it’s ok to say, “I don’t know.” But what is important is that you find the answer to the questions, so the child feels respected and that their questions are important to you.
          One of the questions they often ask which can be difficult is “Is Grandma going to die?” Don’t lie. The reality is that some people do, and some don’t Again, be honest. If you say “no,” and then Grandma dies, the child will feel that you betrayed him or her. 
Dr. Karen Rancourt has some suggestions on how to respond to this question on the website MommyBites:
·         “Sometimes people do die from cancer. We’re not expecting that to happen because the doctors have told us they have very good treatments these days, and Grandma’s type of cancer usually does go away with treatment.”
·         “The doctors have told us that Grandma’s chances of being cured are very good. We’re going to believe that until we have reason to believe something else. We hope you can believe that too. We’ll tell you if we find out anything new or different.”
·         “There is no way to know right now what’s going to happen. We’ll know more after the first treatments are finished. When we know more, we’ll be sure to tell you.”
·         “Right now, there’s not a lot known about the kind of cancer Grandma has. But Grandma is going to give it her best shot and do everything she can to get well.”
·         “Grandma’s cancer is a hard one to treat but she is going to do everything she can to get better. No one can know right now what will happen down the road. What you can be sure of is that we’ll be honest with you about what is going on. If you can’t stop worrying, please tell me so that we can work on that together.”

Children are often scared that it might be contagious. Make sure they understand it is not, and the person who has been diagnosed didn’t do anything to cause this.
If there will any changes to the child’s routine, perhaps you will be taking Grandma or Grandpa to his or her radiation or chemo. Make sure the child knows what is going on. If it affects them, reassure them that they will be taken care of. They need to know that you are still there looking out for them.
Many treatments have side effects such as nausea and hair loss. In my first adventure with cancer, I lost my hair about halfway through and began to wear a hat to cover up my balding head. My 7-year-old Granddaughter was fascinated with what I was hiding under the hat. I am not really a “hat person,” but I felt I really rocked those chemo caps. When she asked me about it, I took it off, so she could see my bald head. I let her know that I didn’t really take the hat off for just anyone, but she was special. Later, when it started growing back, so felt comfortable enough to suggest some hair dye to cover my gray.
The key is for the child to feel safe and involved. If there is anything they can do, let them. I had a hard time during my first rounds of chemo, often having

to go to the hospital. During Christmas time of 2018, it looked as if I was going to be still in the hospital for Christmas. One Saturday before Christmas, my daughter and granddaughter came to the hospital, and we made paper snowflakes and decorations with pipe cleaners. When they left, my hospital room looked like a snowy wonderland. I was so happy, and my granddaughter felt like she had done something to make Grandma happy. The family even brought Christmas Eve to me, with a lasagna dinner, funny Christmas headbands, and lots of presents. You can have the child make cards, visit, make phone calls, or, even better, use Face Time.  
The most important thing is that Mom, Dad, Grandma, and Grandpa are on the same page. If you are the parent, it’s important to ask the patient what he or she wants.

References

Goldstein, C. (n.d.). How can I talk to young children about a grandparent's cancer? Retrieved from Child Mind Insitute: https://childmind.org/ask-an-expert-qa/how-can-i-talk-to-young-children-about-a-grandparents-cancer/
McCue, K. (n.d.). When a grandparent has cancer. Retrieved from Coping with Cancer: https://www.copingmag.com/coping-with-cancer/when-a-grandparent-has-cancer

Rancourt, K. (2012, February 16). How to tell my children their grandmother has cancer? Retrieved from MommyBites: https://mommybites.com/col2/moms/how-to-tell-my-children-their-grandmother-has-cancer/